This is the continuation from my post yesterday. Read that one first, if you haven’t yet!

My son had complex tics when he was diagnosed with Tourette Syndrome, but those tics subsided once life stresses were reduced and we were on the right path.  We were running away from tics with a trial and error of two pages of medication because we were told by my son’s Child Psychiatrist that it was the meds, while never suggesting it could be TS. Once we knew better, after consulting with a Child Neurologist, everything started falling into place, and his tics subsided. My son’s meds have been handled under the same Neurologist which simplifies our lives.

We are more fortunate than others because my son’s tics are mild in comparison to others, which often makes for a great conversation after they have been around my son long enough. They are surprised when I share the facts and they are intrigued enough to ask questions. Like many, they presumed Tourettes was just complex tics. Though I appreciate TS Awareness, I feel that only showing the severe cases of tics has made it more difficult when it comes to people really believing that my son has TS.

My advice to other parents is to never to accept the opinions of professionals as fact or what is best for your child while ignoring your expertise on your child. Ask questions and question what does not sound right. No one knows your child better than you.

Getting professional help is essential, but a one-sided approach is not realistic or beneficial when it comes to TS.  Ignore those who make judgements, and don’t feel guilty if you choose medication because it is not a decision made lightly. Continue reading →