EDITOR’S NOTE: Every Tuesday, noted Tourette Syndrome advocate Troye Evers shares his “52 Weeks of TS” blog journal with the TSParentsOnline community. In cased you missed the first 10 weeks, you can read them here. For more information about Troye, please click on his name or visit his website.
I have Tourette syndrome. Have I mentioned this before? Well of course I have, maybe too much. That thought has been going through my head all week. Do I talk about my TS too much? Does the constant conversation feed my disorder? I mean it’s not as if I’m walking around and telling strangers, “Hey, I have TS”, but I continually bring up the conversation in certain social settings. I guess what I’m saying is, is it too much? Is my activism annoying people? Well if it is, guess what? I don’t care!!
Like I said before, I’m a super hero armed with a mouth, and the first step to education is opening that mouth. I HAVE TOURETTE SYNDROME. This is why I do what I do, if you want to ask me about it, I would love to tell you whatever you want to know.
I actually had a pleasant conversation this week with someone about TS. I had to get a heart sonogram because I’m on Adderall and because my mother passed away at a young age from a heart attack (love you, miss you mom). The technician performing the procedure had me in a position that I was afraid I was going to hit her with my elbow when I ticced.
She let me position myself to where I was comfortable. Not knowing much about TS, she openly asked me question after question, and I openly answered all of her questions. It was a great feeling to be approached on the situation as she did, and to then educate her. Yes, educate someone in the medical field.
I wish it was this easy in all situations, but it’s not. I had a friend ask me, “If someone was to approach me about my TS, how would I like them to do that?” That’s an easy answer for me, just ask me, but that’s just me. There are many people out there who are not as comfortable as I am. It can be a very delicate situation, but I guess to answer the question, you really have to feel out the situation.
If you notice someone ticcing and you feel the need to approach the situation, start off discreetly and with compassion. The person is more likely aware of what they are doing, but more importantly probably very self-conscious of their TS. I am very open about my TS, but that doesn’t mean I’m not self-conscious myself.