52 Weeks of TS: Week 28

EDITOR’S NOTE: Every Tuesday, noted Tourette Syndrome advocate Troye Evers shares his “52 Weeks of TS” blog journal with the TSParentsOnline community. In cased you missed any of the first 27 weeks, you can read them here. For more information about Troye, please click on his name or visit his website.

I’m spending my time in a writer’s paradise — well, anyone’s paradise. People from all over the world come to Martha’s Vineyard. It’s the “Lap of Luxury” for the New England area. You have it all — sun, relaxation, great food, and much more. I have been trying to take advantage of all that I can, trying to relax and get some sun. I have realized that I don’t tic as much as usual when I am relaxing on the beach.

Could it be the vitamin D from the sun, or am I just that relaxed that my tic decided to take a break? I’ve tried to pay attention, and I’m pretty sure I’m not suppressing them. I have been suppressing my tics for so many years, it’s second nature. Half the time I’m not even sure if I’m suppressing or not. However, I have found it interesting, and when I get back to New York, I want to try to take some vitamin D supplements. Hey, why not? It’s worth a shot. Just one more attempt to escape from the beast inside of me.

I have been quite relaxed in the sense of my anxiety, but still have been a bit stressed out. I know that sounds like an oxymoron, but after 37 years, I have realized there is a difference. When you look up stress in the thesaurus, anxiety is one of the top words, but there is a difference — especially if you have anxiety disorder.

They are very similar, but I have been so relaxed, that my anxiety level has been so low, and life is quite enjoyable. Anxiety controls and takes over your whole body, but I feel as if stress is just in your mind. You can breathe off some stress, but at least for me the anxiety just lives there. If you’re anxious, you almost have to just ride it out, and I’ve been riding it out for a long time.

You think that living in the “Lap of Luxury” would be stress free, but paradise isn’t always what it seems. The house that I’m staying at is my cousin’s and her wife’s home, and there are many people staying there. This week the number of permanent people has increased to 10 people. We all have our own separate spaces — there is the main house and a guesthouse. Still, with the amount of people, there are bound to be some head butting issues.

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52 Weeks of TS: Week 27

EDITOR’S NOTE: Every Tuesday, noted Tourette Syndrome advocate Troye Evers shares his “52 Weeks of TS” blog journal with the TSParentsOnline community. In cased you missed any of the first 26 weeks, you can read them here. For more information about Troye, please click on his name or visit his website.

Find a penny, pick it up, all the day you’ll have good luck. Do you think this really works? I don’t know, but I have a secret: I’ve only told one person this so far, and it’s not even my husband. In the past month, I have started to develop some sort of OCD/germaphobia to pennies. It’s actually growing to all change.

It used to be if I saw a penny on the street and it was face up I would pick it up, and if it were face down I would flip it over for the next person to find. My husband would always leave change all over the house, and it was my morning ritual to walk around and collect it all and put it in the change jar, this is no longer the case.

It started about a month ago, I saw a penny on the carpet in my house and it was facing head down. I didn’t even want to touch it, to flip it over, because I knew it would still be me who picked it up later. Wouldn’t that defeat the whole purpose if I were the one who originally flipped it over?

I find myself now walking around avoiding all change I find anywhere. If I really start thinking about it, (OK, I’m not thinking about it — I’m obsessing about it, but anyway) how many people, with how many germs have touched that coin, or any type of currency for that matter. Even look at the trail of paper currency, they actually have a web site where you can track where that single dollar bill has been.

When I get to thinking about this (obsessing), I think about rumors per say, about there being residue of cocaine on most paper currency. REALLY? After a million people have touched that dollar bill, you’re comfortable to shove that up your nose. I’d like to invite the world to come pick my nose. I don’t think so!

Enough with the bitching about my germaphobia with money, I’ll figure out another way to save money. Let’s talk about change, but not that kind of change, change that we can achieve.

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UPCOMING WEBINAR: November 12 on getting kids motivated for school

THIS WEEK’S WEBINAR

Getting Kids Motivated for School: Strategies to foster your child/teen’s motivation to achieve in school

November 12, 2014
Presented by Dr. Graham Hartke, is a licensed psychologist in private practice in Roseland, N.J.

As our schools continue to increase curriculum, testing, and workload standards, many kids and teens are struggling to stay motivated in school. These are students who do not like school, struggle to complete homework, procrastinate often, have slipping grades, are bored, say they “don’t care about school”, avoid school work, get in trouble, are disorganized, and/or feel disconnected from classroom learning.

This webinar focuses on strategies parents and educators can use to increase student motivation to succeed in school. Strategies will address the causes of low motivation, learning difficulties, improving the homework process, improving organization, and reducing procrastination.

REGISTER FOR THIS WEBINAR »

OTHER UPCOMING WEBINARS

 

Bullying & Vulnerable Populations

November 19, 2014
Presented by Nadia Ansary, Ph.D.
More information about this webinar »

Monsters, Robbers & Nightmares, Oh My! Simple Ways to Improve Your Child’s Sleep

December 3, 2014
Presented by Courtney Weiner, Ph.D.
More information about this webinar »

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52 Weeks of TS: Week 25

EDITOR’S NOTE: Every Tuesday, noted Tourette Syndrome advocate Troye Evers shares his “52 Weeks of TS” blog journal with the TSParentsOnline community. In cased you missed any of the first 24 weeks, you can read them here. For more information about Troye, please click on his name or visit his website.

This week could be one of the highest stress, anxiety-filled weeks yet this year. My father had been gone for almost 12 years and my mother just over four years. Losing a loved one is never easy, and I’m not sure you really ever get over it — especially losing them at such an early age. I lost both my parent before I even reached 35 years old, and they were both in their early 50s when they passed.

Since I spent most of my life in the TS closet, I never really spoke to them about it. If TS is in fact hereditary, I’m not sure which side of the family it came from, and now I can’t ask them to see if they would have a clue. My parents divorced when I was very young, but both were remarried and had kids. I guess I will get the answer to my question if any of my nieces or nephews ever starts ticcing, but I would not wish that on any of them.

I don’t wish this mysterious disorder on anyone, but at least if one of my nieces, or nephews were ever diagnosed with TS, they would have me there for them. Someone to show them it’s just another thing; it’s not a death sentence. It’s just something we deal with, and move on with, day to day. That’s what I do.

As for kids and myself, that’s not going to happen. I did want kids at one point in my life, but my husband doesn’t, and now I just feel too old anyway. If my husband ever did want to have kids, I would want to use his swimmers anyway, not mine. I would not want to chance my kid having TS. What if it was worse than mine is. I just couldn’t handle the thought knowing I did that to this person.

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List of all NJCTS webinars, including October 29 on mental health in the African-American community

THIS WEEK’S WEBINAR

Mental Health Stigma in the African-American Community

October 29, 2014
Presented by Dr. Christine Adkins-Hutchison, Associate Director of the Office of Counseling and Disability Services at Kean University in Union, N.J.

Asking for help of any kind can be difficult. Seeking psychological services can be even more challenging. For many in the African American community, acknowledging the need for help and pursuing assistance in many forms, especially in the form of counseling, can feel next to impossible.

This webinar will discuss the stigma regarding help-seeking and mental health issues that persists in this ethnic community. How to recognize the need for support, and ways to encourage help-seeking in this population also will be considered.

REGISTER FOR THIS WEBINAR »

OTHER UPCOMING WEBINARS

Getting Kids Motivated for School

November 12, 2014
Presented by Graham Hartke, Psy.D.
More information about this webinar »

Bullying & Vulnerable Populations

November 19, 2014
Presented by Nadia Ansary, Ph.D.
More information about this webinar »

Monsters, Robbers & Nightmares, Oh My! Simple Ways to Improve Your Child’s Sleep

December 3, 2014
Presented by Courtney Weiner, Ph.D.
More information about this webinar »

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