NJ Walks for TS at Princeton is right around the corner!

Here is a blog post from our daughter, Tess, who is helping us and the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) put on the 1st NJ Walks for TS at Princeton on Sunday, April 6:

A few months ago, I talked about the NJ Walks for TS at Mercer County Park (near Princeton township) which will take place on Sunday, April 6. Registration will begin at 1 p.m. and the walk will start at 2 p.m. I’m urging you to please come join me there and help support NJCTS.

The money raised will be applied to the Children’s Scholarship Fund, a program that has helped more than 200 high school seniors with TS. Our goal for this fundraising walk is $10,000, and if we want to be able to achieve this, we will need the support of everyone in the central and southern New Jersey TS community.

This walk can make a big difference! It means so much to me, and it is a wonderful and fun way for us to help NJCTS — which is an important organization to all of us! If you can’t attend the walk, please consider making a donation.

Thank you! Hope to see you there!

~ Tess

It’s time to start getting excited about NJ Walks for TS at Princeton!

Welcome to the debut of NJ Walks for TS at Princeton! This event is an offshoot of the highly successful NJ Walks for TS at Mendham, which has been taking place since 2010 in North Jersey to support the programs and services of the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS). Now, it’s Central and South Jersey’s turn!

On Sunday, April 6, the first NJ Walks for TS at Princeton will take place at 2 p.m. at beautiful Mercer County Park in West Windsor. Registration and check-in will commence at 1 p.m. that day, but fundraising for this incredible day of advocacy and awareness starts NOW!

NJ Walks for TS at Princeton exists to support the NJCTS Children’s Scholarship Program, which over the past 10 years has awarded more than 200 scholarships to graduating New Jersey high school seniors affected by Tourette Syndrome. Each scholarship recipient is selected for his or her academic achievement, community service and accomplishments as an individual with TS — an inherited, misunderstood, misdiagnosed neurological disorder that affects 1 in 100 children.

Why is the NJCTS Children’s Scholarship Program so important? Check out this quote from one of its recipients back in 2009:

“This is the first time in my life I have ever been recognized in a positive way for having Tourette Syndrome. Thank you from the bottom of my heart.”

Who wouldn’t want to get behind something like that?! Children living with TS need to be recognized and encouraged for their unique talents, and this program does just that in a way that none other nationwide can claim. It’s unique. It’s vital. It’s in need of your support.

NJ Walks For TS at Princeton also exists to promote awareness, acceptance, action and advocacy of Tourette Syndrome and its associated disorders at a day of fun and empowerment for kids, by kids and about kids. In fact, the impetus behind bringing the NJ Walks for TS program to the Princeton is 14-year-old Tess Kowalski, who has TS and has been a youth advocate for NJCTS since 2011.

So make April 6, 2014, the day you walk the walk and stand up alongside kids with TS and other neurological disorders! It doesn’t matter what makes us different when we focus on what makes us strong.

SIGN UP AS AN INDIVIDUAL OR JOIN A TEAM

DONATE OR FUNDRAISE TO SUPPORT TS SCHOLARSHIPS

WANTED: Participants for educational, fun upcoming events!

Here are a few events coming up that are associated with the New Jersey Center for Tourette Syndrome. NJCTS offers many programs and services to the TS community., many of them geared toward kids and teenagers. We strongly encourage you to check out these events and consider signing up for, supporting and/or attending as many of them as possible!

April 5: Deadline for the NJCTS Children’s Scholarship

April 5: Deadline for the Educator of the Year nominations

April 7: “Mirror Mirror” to be shown in sensory-friendly format

April 11: Webinar on classroom accommodations for those with Tourette

April 29: Tourette Syndrome Awareness Day with the Somerset Patriots

May 11: Deadline for YMCA Camp Bernie retreat applications

May 21: Dare To Dream Student Leadership Conference at Rutgers

June 8-10: Eighth annual YMCA Camp Bernie family retreat weekend

 

Daily Tourette Syndrome Links: Tuesday, Feb. 21

Here are a few recent links from the New Jersey Center for Tourette Syndrome. NJCTS offers many programs and services to the TS community. Please enjoy these links, sign up for an event or two, and let us know if there are any ways in which we can serve you better!

Tourette Syndrome Awareness Day will be centerpiece of weeklong advocacy campaign

Wednesday Webinar series continues with Feb. 29 presentation on OCD

Children’s book “Emily’s Tic” now available on Amazon.com

Teens have mixed feelings about New York students with mystery illness

Families sing praises about importance, value of annual family retreat weekend

Dare To Dream Student Leadership Conference poster contest — deadline March 1

Educator and Healthcare Provider of the Year Award nominations

Children’s Scholarship Award applications

Eighth annual family retreat weekend at YMCA Camp Bernie — June 8-10