Misery loves company, and I love you!

The other day I was knee-deep in Chapter 9 out of 12 of my book. For reasons that have yet to be explained (other than sometimes stories take time, especially when you are living them), I am well on track to having this book done by the time my kids get out of school. Two years to get 9 chapters done (including an intro) and 4 weeks to finish the last 4? Sure. Like tics, it just is what it is.

Despite feeling excitement about wrapping this sucker up, I am feeling a bit of fear and angst, too. “What if no one cares? What if the TS community likes it, but the rest of the ‘special needs’ mamas out there think I’m a whack job? What if instead of being supportive I come off like nothing but a whiny freak job? And, the big question that begs for an answer: What if I can’t get an agent to back this?”

Such normal doubts and fears accompany artists of any kind, which is what makes their journey so exciting. With it, luckily, comes confirmation. For me, this came in the form of an email from someone in my private Twitch and Group:

Her son’s vocals are currently out of control.

As it turns out last month, so were my son’s. And, as I did, she told her kid to “Please Stop It Now!” and then went through a bottle of wine and, guess what, the tics are still there! Who knew. While I never want to see a fellow mother suffer, I saw this as having two meanings:

  1. I am not a nut job. We all go thru rough times. Thank God we can express it to each other.
  2. My book is on the right track. She called me right as I was finishing a chapter on the very subject.

Mamas out there, I want you to know that there’s a lot I don’t know. I care if you ever buy a copy of my book, but buy this: YOU ARE NOT ALONE. YOU WILL GET THROUGH THIS. I PROMISE.

That promise comes guaranteed, signed and stamped by the production house of Andrea Has Been There And Has Not Yet Been Committed to the Nut House.

Until next time, hug that ticker of yours today!

Check out the book “Welcome To Biscuitland”

BiscuitlandLiving with a disability is challenging, especially one as misunderstood and publicly visible as Tourette Syndrome. “Welcome to Biscuit Land: A Year in the Life of Touretteshero” (Chicago Review Press, April 2013) by Jessica Thom, with a foreword by Stephen Fry, is an honest account of Thom’s life as she navigates the world of public transportation, working with children and daily tasks complicated by her uncontrollable verbal and physical tics.

Frustrated by a lack of understanding, Jessica set out to document her struggles and successes as a person diagnosed with severe Tourette. Squawking on the bus, shouting the word “biscuit” several hundred times a day, hitting herself in the chest until her knuckles bleed, applying for disability programs to cover the extra expenses of living with Tourette and explaining her condition to gawking onlookers might have caused her to succumb to depression.

However, she chose to see herself as Touretteshero, “changing the world one tic at a time.”

“Welcome to Biscuit Land” is a celebration of the humor and creativity of the syndrome. Thom experiences compassion in the form of kind strangers who defend and help her, understanding responses of inquisitive children and love and support from a remarkable cast of friends and family members including Leftwing Idiot, Fat Sister and King Russell.

Living with Tourette isn’t easy. “Welcome to Biscuit Land” is funny, moving, sad, surprising and ultimately heart-warming account of Thom’s contagious optimism.

Thom studied drawing at Camberwell College of Art, works as the project coordinator at Oasis Children’s Venture in South London, and writes her daily blog www.touretteshero.com. Stephen Fry is a well-known actor, screenwriter, comedian, author and director.

Conditional Corner: A collection of fiction, poetry and artwork about OCD

Conditional Corner is a series that runs Fridays on TSParentsOnline. All stories, including this excerpt from a compilation called Check Mates, were originally published at Conditional Publications.

Check Mates is an original collection of fiction and poetry written about Obsessive-Compulsive Disorder (OCD) by the people who know best – Obsessive-Compulsives. Split between realism and stories of the beyond, there is a diverse range of styles and genres, and a mix of rage, frustration, tears, violence, pain, heartache, subversion, love, strength, metaphysics, philosophy, friendship, hope, and even a bit of humor. And maybe – just maybe – it will knock away a few stereotypes.

checkmateshomepageimage2red2The following is a poem called “Imagine” that was written by a girl named Kristin from New Jersey who was 15 when she penned it. She says her religion is what gets her through the tough times. She is also the youngest contributor in “Check Mates” and provides a glimpse of just how much OCD can hurt at such an early age.

If, after reading this sample, you are interested in finding out more about Check Mates, other samples are available here, or you can purchase it at Amazon.com. We hope you enjoy the poem “Imagine!” Continue reading

“On Fire” — a new novel about a girl with Tourette

On-Fire-WebTourette Syndrome Foundation of Canada member Dianne Linden is the author of a new YA-adult crossover novel, “On Fire.” The character Matti Iverly, one of the narrators in the book, is based largely on the life experiences of Erika, a young person with TS and Dianne’s granddaughter.

GG Award Winning author Glen Huser has said of On Fire: “Linden brings many combustibles to this story ablaze with creativity: magic realism… mountain country mythology… survival stories… even some kindling from Dante. But what burns brightest is the voice of Matti, a teenager with Tourette Syndrome—true, and funny and heart-breaking—as she describes what happens when a young man with amnesia wanders out of a forest fire and into her life.”

TSFC got in touch with Dianne and Erika to learn more about this new book and its impact on the writer and her inspiring family member.

Q: Dianne & Erika, could you each say in your own words what you think On Fire is about?

A: Dianne – On the surface On Fire is the story of Matti Iverly, a fourteen-year-old girl with Tourette Syndrome whose life is changed when a young man with amnesia wanders out of a forest fire area and collapses at her feet. It’s also the story of that young man’s struggle to reconnect with his life and reconstruct his identity. And about the power of community.

At a deeper level, it’s an allegory of the labyrinthine trials our kids often go through trying to “fit in”, and the courage and community support that allow some of them to make it through.

A: Erika – It’s about a girl like me who has Tourette Syndrome. She makes a promise to help this guy who needs her help and she keeps her promise, although it takes everything she has. Continue reading

Ask Dr. Ticcy: My daughter just got diagnosed and I don’t know what to do!

Ask_Dr_Ticcy_Logo-238x250Dr. Ticcy is a pseudonym for the Tourette Syndrome Foundation of Canada National Office, which draws on information from experts across Canada and beyond to answer questions from the TS community. Please send your questions to tsfc@tourette.ca with the salutation “Dear Dr. Ticcy.”

Dear Dr. Ticcy,

My daughter was just diagnosed with TS. I don’t know what to do. I am a teacher but I don’t have experience with TS. Please help!

From,
Newly Diagnosed Continue reading