The libel of labels
From the moment we are born, there are labels. Good baby. Easy baby. Difficult baby. Fussy baby. It seems we are destined to a life of words meant to define us — if we let them. In my life, I’ve… Continue Reading
From the moment we are born, there are labels. Good baby. Easy baby. Difficult baby. Fussy baby. It seems we are destined to a life of words meant to define us — if we let them. In my life, I’ve… Continue Reading
Here’s an exclusive look at my Tourette Syndrome, as told in the three-part National Geographic series “Extreme Lives, Strange Behaviours” that will air on TV beginning June 24 but are on YouTube now. I hope you enjoy them and learn… Continue Reading
My husband recently shared with me a conversation that he had with a person who posted a comment on our first Tourette’s interview. More often than not, the comments are positive and supportive. However, there will always be ignorant people… Continue Reading
I called a camp for summer. I was thinking about enrolling Stink and Pip in musical theatre. I mentioned that Stink has Tourette Syndrome. Their response was that it’s fine — if he comes with an aid. “An aid? He doesn’t… Continue Reading
This post is for my son, Jacob, who happens to have Tourette Syndrome, and he happens to be one of my greatest teachers. May 15-June 15 is National Tourette Syndrome Awareness Month. Pass this blog along to one person and… Continue Reading
There are two ways you can help your child be amazing despite a few tics and twitches (or even major ones): Concentrate on their gifts, not their weaknesses! Be funny! Laugh! Fake it til you make it! (Lots of exclamations… Continue Reading
Hi everyone, I just wanted to share a little note that shows how important it is to support S. 2321, the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011. I posted the following short letter to the POPVOX website… Continue Reading
Please join TSParentsOnline, the New Jersey Center for Tourette Syndrome, the Tourette Syndrome Association and the hundreds of thousands of Americans with TS in celebrating Tourette Syndrome Awareness Month, May 15 to June 15. Tourette Syndrome is a misdiagnosed, misunderstood neurological… Continue Reading
Our daughter, Tess, recently spoke at a “Celebrate Uniqueness” Day in South Brunswick, and she just received a PILE of thank-you cards with sentiments such as: “I didn’t realize people with these type of disabilities suffered a lot from other people… Continue Reading
My daughter is 12 years old and was diagnosed with Tourette Syndrome when she was 5. Despite being a psychologist, I did not recognize her symptoms as TS initially, and even after the diagnosis was terrified. I have since learned quite… Continue Reading