Daily Tourette Syndrome Links: Tuesday, Feb. 28

Here are the past few days’ Tourette Syndrome-related links from websites all over the Internet. This is just another way TSParentsOnline hopes to help the parents of the TS community. Also, we are looking for more parent contributions. We would love to hear from you! Thanks!

American Idol contestant talks about bullying to students

Mom fights for PANDAS diagnosis after son’s sudden onset of OCD

Can an infection suddenly cause OCD?

Some LeRoy patients with mystery illness starting to get better

Tourette Syndrome Awareness Week, April 23-29

Teen writes book on Tourette

Common Sense blog on TS

Strep throat one minute, OCD the next

A country united: Saying yes to federal Tourette legislation

A Little Bit Different blog on current events in the TS world

Manage Tourette Syndrome and tics with meditation

Tourette Syndrome Awareness Club on Facebook

A family’s personal Tourette blog

Coach apologizes for Tourette cheer and other remarks

Developing TS: A child’s struggle

 

Dope-I-Mean: Getting mad at Dopamine

As I type this post, my son is doing a light warble about every 30 seconds as he speaks. His playmate, a blond neurotypical easygoing girl, is not bothered in the least. I, on the other hand, am annoyed beyond reason.

“We have to save the world! Ah ah ah… Let’s use this stick and go for it!” Stink sings, before shooting out the back door Video Game style.

I know I should be happy that my son does not have a more severe case. I should be thrilled he is socially accepted, he likes himself and we have no end to the gaggle of kids in and out of our house. And yet, the nonending machine-gun consistency of this dopamine-firing induced tic has me unglued.

I get short with the kids. (My next post will be my confessional post. Be kind.) I have two reasons in particular to feel the sting of this tic: Continue reading

A country united: Tourette Syndrome community says yes to bill H.R. 3760

Since it was introduced by U.S. Congressman Albio Sires (D-NJ13) on Dec. 20, 2011, bill H.R. 3760 — the Collaborative Academic Research Efforts for Tourette Syndrome Act of 2011 — has gained a lot of national attention.

It now has 36 co-sponsors, is pending review by a Congressional subcommittee and is being voted on and debated by people from all over the nation on multiple legislative websites, including POPVOX.

On POPVOX, which bridges the gap between the input the public wants to provide and the information members of Congress want and need to receive, H.R. 3760 has garnered overwhelming support — 83 percent of those who have weighed in about it have said, “YES! We want and need this legislation.”

We want to let you know what people nationally have been saying about the bill and why it is so important, as well as encourage you to support it and spread the word! Please enjoy these testimonials and then head to POPVOX to voice your opinion and make this YOUR legislation! Continue reading

I’m just learning about Tourette Syndrome … help?

I am a mother of a 7-year-old daughter, Siena, who has multiple disabilities. She has Asperger’s, anxiety disorders, language problems, a tic disorder (which now needs to be changed to Tourette’s), sensory issues, etc., and as a result we have a lot of challenges to deal with.

We love her dearly, and my husband and I spend as much time as possible helping her, which of course is difficult as we are both working full time. I am a licensed clinical social worker who provides counseling. Siena is currently receiving help in occupational therapy (OT) and an ongoing social skills group.

The school has refused to help, so we are battling that as well! I am sure these are issues and themes that many parents can relate to! I do not have to much history with TS. Siena has had tics since a young age, and now they keep recycling and have increased in amounts and duration and types. I am newer to this area, so I need to gather more information myself!

Daily Tourette Syndrome Links: Tuesday, Feb. 21

Here are a few recent links from the New Jersey Center for Tourette Syndrome. NJCTS offers many programs and services to the TS community. Please enjoy these links, sign up for an event or two, and let us know if there are any ways in which we can serve you better!

Tourette Syndrome Awareness Day will be centerpiece of weeklong advocacy campaign

Wednesday Webinar series continues with Feb. 29 presentation on OCD

Children’s book “Emily’s Tic” now available on Amazon.com

Teens have mixed feelings about New York students with mystery illness

Families sing praises about importance, value of annual family retreat weekend

Dare To Dream Student Leadership Conference poster contest — deadline March 1

Educator and Healthcare Provider of the Year Award nominations

Children’s Scholarship Award applications

Eighth annual family retreat weekend at YMCA Camp Bernie — June 8-10