NJCTS Selected as a Finalist for 2015 NJBiz Healthcare Heroes Award

IMG_3674NJ Center for Tourette Syndrome and Associated Disorders (NJCTS) was proud to be among six finalists selected for the 2015 NJBiz Healthcare Heroes Award in the Education Hero Organization category.

The 2015 Healthcare Heroes awards program honors the best individuals and organizations that are making a significant impact on the quality of health care in New Jersey. Winners were announced during a breakfast ceremony held at The Palace at Somerset Park in Somerset, NJ, on June 23.

Other finalists in the Education Hero Organization category were AtlantiCare, CentraState Healthcare System, Fairleigh Dickinson University School of Pharmacy, Meridian Health, NJCTS, and winner The Liberty Science Center. NJCTS congratulates all winners, finalists, and nominees.

Accepting the certificate on behalf of NJCTS was Executive Director Faith W. Rice.

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NJCTS was formally initiated in 2004, but Rice’s grassroots efforts in Tourette Syndrome advocacy trace back earlier to when her son was diagnosed with the disorder. Before establishing NJCTS, Rice was in marketing, human resources, and strategic planning with the IBM Corporation. That extensive for-profit experience has allowed her to structure NJCTS as a non-profit organization that promotes collaboration and partnerships among individuals, universities, hospitals and other resources to provide services and support for the 1 in 100 children and their families affected by TS and its associated disorders.

These collaborative efforts have resulted in the formation of the world’s first Tourette Syndrome Cell & DNA Sharing Repository and a Tourette Syndrome Clinic (both at Rutgers University), a School and Faculty Education program serving schools across New Jersey, and a Patient-Centered Medical Education program which has armed a new generation of resident physicians with the tools necessary to properly diagnose and treat Tourette Syndrome.

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NJCTS is the nation’s first Center of Excellence for Tourette Syndrome (TS). Through partnerships and collaborations, NJCTS provides services, support, and education for families; outreach and training for medical and educational professionals; and advocacy for collaborative research for better treatments and a cure for TS.

Goryeb Children’s Hospital Physicians Receive Tourette Syndrome Education

Often, residents and practicing physicians at hospitals have very little experience with Tourette Syndrome (TS) because little attention is paid to the inherited, misdiagnosed, misunderstood neurological disorder during their time in medical school.

Approximately 30 pediatric residents at Goryeb Children’s Hospital attended the June 2 Patient-Centered Medical Education (PCME) Program presented by the NJ Center for Tourette Syndrome & Associated Disorders (NJCTS) and walked away with a better understanding of TS.

Presented by the Nowacki family and College of New Jersey student Grace Hawruck, the PCME offered a general overview of Tourette Syndrome, which affects 1 in 100 children and adults.

Anna Nowacki and her sons, Joseph and Jacob, together with Grace Hawruk presented the NJCTS Patient-Centered Medical Education Program to more than 30 resident physicians at Goryeb Children's Hospital on June 2.

Anna Nowacki and her sons, Joseph and Jacob, together with Grace Hawruk presented the NJCTS Patient-Centered Medical Education Program to more than 30 resident physicians at Goryeb Children’s Hospital on June 2.

Anna Nowacki and her sons, Joseph and Jacob, spoke about their journey from discovery to diagnosis and finding support at NJCTS. Grace Hawruk shared her story of transitioning to life as a successful college student.

“It’s amazing how we as teenagers can teach doctors and residents,” said Hawruk. “Sharing our stories now can help doctors when they come across a patient with TS. Getting up in front of people and talking about my TS is a confidence boost and I always leave so proud of myself, other kids sharing their stories, and NJCTS knowing that we are making a difference in the Tourette community.”

The goal of the Patient-Centered Medical Education program is to help residents and physicians enhance their understanding of the perspectives, stresses, and needs of those with neurological disorders such as TS to improve patient encounters. NJCTS works with hospitals throughout New Jersey to present these education sessions. In addition to Goryeb Children’s Hospital, PCME presentations have been facilitated at Cooper University Hospital, St. Mary’s Hoboken University Medical Center, Kennedy Memorial Hospital, Children’s Specialized Hospital, and JFK Medical Center.

For more information about the Patient-Centered Medical Education Program, contact NJCTS Education Outreach Coordinator Gina Maria Jones at 908-575-7350 or visit www.njcts.org.

Next Wednesday Webinar “Tourette Syndrome: A Psychiatric or Neurological Disorder” is June 24

LOGO2Join us for our next webinar in the Wednesday Webinar series on June 24, 2015, from 7:30pm to 8:30pm.

Dr. Harvey Bennett and Dr. Joshua Braun will discuss “Tourette Syndrome: A Psychiatric or Neurological Disorder,” covering the neurobiology, genetics, and diagnosis of TS. They will also review behavioral and pharmacological treatments. They will focus on the neurological and psychiatric manifestations of this unique neuropsychiatric entity. By the end of the presentation the audience will be knowledgeable about tic disorders and their psychiatric comorbidities.

Dr Harvey Bennett was the founding director of the division of Child Neurology and Developmental Medicine at The Goryeb Children’s Hospital at Morristown Medical Center in 2005. In 2014 he stepped down from administrative responsibilities to pursue his clinical and research interests in neurodevelopmental disabilities. Dr Bennett is a Clinical Professor of Pediatrics and Neurology at The Icahn School of Medicine at Mount Sinai in New York City. Dr Bennett graduated from the Albert Einstein College of Medicine and subsequently trained in Pediatrics and Neurology at St Christopher’s Hospital for Children in Philadelphia and at The Hospitals of Albert Einstein in New York. He is triple board certified : Pediatrics, Child Neurology and Neurodevelopmental Disabilities.

Dr Joshua Braun is a full time staff child and adolescent psychiatrist at Morristown Medical Center in Morristown NJ. He is the director of the psychosomatic medicine service, as well as co-director for the Center for Therapeutic Brain Stimulation at Morristown Medical Center. Dr. Braun graduated from the Medical College of Georgia and subsequently trained in Adult Psychiatry at Montefiore Medical Center and Bronx Psychiatric Center before staying on to do a fellowship in Child and Adolescent Psychiatry at Montefiore Medical Center and the Bronx Children’s Psychiatric Center. He is double board certified in both Adult Psychiatry and Child and Adolescent Psychiatry.

Register for the webinar
After registering you will receive a confirmation email containing information about how to join the Webinar.

Tim Howard Kicks-off Year Long Awareness and Fundraising Campaign at Team Up with Tim Howard

Hundreds of fans joined the NJ Center for Tourette Syndrome (NJCTS) and Rutgers Men’s Soccer in welcoming home world renowned goalkeeper and New Jersey native Tim Howard at the Team Up with Tim Howard event on June 4 at Rutgers University.

Tim Howard signs copies of his book, The Keeper, at Team Up with Tim Howard on June 4

Tim Howard signs copies of his book, The Keeper, at Team Up with Tim Howard on June 4

For many Team Up with Tim Howard was a chance to meet a world famous athlete. For others it was a chance to meet a hero, a Tourette Syndrome champion—proof that an individual with Tourette Syndrome can be and do anything. To others like Ethan Lederman, 14 years old from Howell, NJ, “It was the best day of my life.”

Tourette Syndrome (TS) is a neurological disorder characterized by involuntary sounds and movements known as tics. It is estimated that 1 in 100 children show symptoms of the disorder with more than 20,000 school-aged kids in New Jersey alone.

Team Up with Tim Howard  kicked-off a year-long awareness campaign benefiting the NJCTS Youth Development programs, including the NJCTS Tim Howard Leadership Academy. The Academy is a four-day intensive program in August for teenagers diagnosed with TS focusing on empowerment, self-leadership, advocacy skills and resilience.

NJCTS Youth Advocate Tess Kowalski opened the afternoon by singing the national anthem. State Senators Christopher “Kip” Bateman, James Beach, and Bob Smith represented the more than 26 towns across the state recognizing June 4th as Tourette Syndrome Awareness Day. Senator Bateman presented Esther Howard, Tim Howard’s mother, with Governor Chris Christie’s proclamation recognizing May 15 through June 15 as Tourette Syndrome Awareness Month. North Brunswick Township Councilman Ralph Andrews, on behalf of Mayor Francis “Mac” Womack, welcomed home North Brunswick native Tim Howard.

The fun-filled afternoon continued with Coach Dan Donigan and Rutgers Men’s Soccer leading a clinic for kids while DJ Yoshi and the Rutgers University Dance Team entertained the crowd. Danny Breslauer returned to Piscataway to serve as emcee for the day. Breslauer was a long-time play-by-play analyst for Rutgers sports including football, soccer, and women’s basketball. He led the audience and 320 soccer clinic participants in giving Tim Howard a welcome he’ll not soon forget.

More than 300 kids participated in a soccer clinic with Rutgers Men's Soccer at Team Up with Tim Howard on June 4

More than 300 kids participated in a soccer clinic with Rutgers Men’s Soccer at Team Up with Tim Howard on June 4

Tim Howard met and posed for photos with fans of all ages and signed hundreds of copies of his book, The Keeper: A Life of Saving Goals and Achieving Them before joining Danny Breslauer on the field. An integral partner of NJCTS since its founding, Howard spoke to Breslauer about soccer, his experience playing in the world cup, and living with Tourette Syndrome.

Howard was diagnosed with TS as a child and has since brought TS to the world stage, sharing his inspirational message of resilience in the face of Tourette Syndrome. “Being great is within our reach,” said Howard. “The time has come that we stop making excuses. It’s time to live and thrive with Tourette Syndrome. I knew I had TS and I knew it affected my everyday life, but I never thought for a second it would stop me. Anything is possible.”

NJCTS Executive Director Faith Rice recalled the moment she first met the budding soccer star. “We were just getting off the ground then,” Rice said. “He came to us about 13 years ago when he wanted to go public with the fact that he had Tourette Syndrome. He came in on the ground floor literally. He came and volunteered. He collated and organized papers. He signed posters to our original group of kids. It was just a handful then when we started out. And that handful has grown to a statewide and regional reach and some programs have a worldwide reach.”

Tim Howard has been very public about Tourette Syndrome but at Team Up with Tim Howard he upped his game, introducing an important new initiative called The GreaTS. “I am teaming with NJCTS to bring this platform to light and open the conversation about TS,” said Howard. “Together we are building awareness for TS and, most importantly, directly helping youth find their path to personal greatness. This is a movement that asks people to stand with The GreaTS to overcome some of the challenges of TS. I have had some wonderful and proud moments in my career. Launching The GreaTS is one of them.”

The GreaTS

The GreaTS

For more information about NJCTS, the NJCTS Tim Howard Leadership Academy, and The GreaTS, please visit www.njcts.org or call 908-575-7350. To invest in the endowment for the Leadership Academy, visit www.gofundme.com/TimHowardTSFund.


Team Up with Tim Howard was sponsored in part by
Verizon NJShares, RUCDR Infinite Biologics, The Warner Rice Family Fund, Asurion, The Zoffinger Family Fund, Atlantic Health, South Jersey Industries, PennEast Pipeline, The Spar Family, The Tischfield Family, The Omaggio Family, The Sherbondy Family, Fresh & Co., PixiCast, JAG Physical Therapy, Connor Strong, New Jersey Manufacturers Insurance, Somerset Development, Dr. Robert King, AMA Consulting, The Judy Taub Gold Foundation, Oxford Realty, The Mueller Family, Sterling Management Services, Philip and Tammy Murphy Family Foundation, and Flemington Car & Truck Company

Don’t Miss Your Chance to Team Up with Tim Howard

World renowned goalkeeper Tim Howard comes home to New Jersey this Thursday. Howard will join fans of all ages to discuss his accomplishments on the field and share his inspirational message of resilience in the face of Tourette Syndrome. Tickets are available at NJCTS.org for Team Up with Tim Howard which will take place Thursday, June 4 from 3- 5 p.m. at Rutgers University’s Yurcak Field in Piscataway, NJ.

Soccer superstar Tim Howard comes home to NJ to inspire fans and share his vision for the NJCTS Tim Howard Leadership Academy For tickets, visit njcts.org.

Soccer superstar Tim Howard comes home to NJ to inspire fans and share his vision for the NJCTS Tim Howard Leadership Academy. For tickets, visit njcts.org.

Tourette Syndrome (TS) is a neurological disorder characterized by involuntary sounds or movements known as tics. It is estimated that 1 in 100 children show symptoms of the disorder with more than 20,000 school-aged kids in New Jersey alone.

Team Up with Tim Howard is hosted by the NJ Center for Tourette Syndrome (NJCTS) and Rutgers Men’s Soccer and will kickoff a year-long awareness campaign to benefit the NJCTS Tim Howard Leadership Academy, a four-day intensive program in August for teenagers focusing on empowerment, self-leadership, advocacy skills and resilience.

An integral partner of NJCTS since its founding, Howard will speak about soccer, his experience playing in the World Cup, and living with Tourette Syndrome (TS). Howard was diagnosed with TS as a child and has since brought TS to the world stage. “I have made it my goal to debunk the myths and bullying that come with the disorder,” said Howard. “I have found that one of the best ways to do this is to educate people.”

After the opening ceremony, the Rutgers Men’s Soccer Team leads a clinic for kids, DJ Yoshi rocks the turntables, the Rutgers University Dance Team performs, and Tim Howard will sign copies of his book, The Keeper: A Life of Saving Goals and Achieving Them. The soccer clinic is now full but if you call 908-575-7350 we will add your child’s name to the waiting list.

Pre-registration is suggested for Team Up with Tim Howard by visiting NJCTS.org. Admission is $10 per person. Onsite registration will take place starting at 2 p.m. at Yurcak Field on June 4th. Attendees are asked to arrive at the event between 2:00 and 2:30 p.m. Anyone under 17 must be accompanied by a ticket holding adult.

To secure your spot at the Team Up with Tim Howard event and for more information about NJCTS and the Tim Howard Leadership Academy, please visit www.njcts.org or call 908-575-7350.

 

Team Up with Tim Howard is sponsored in part by

Verizon NJShares, The Warner Rice Family Fund, RUCDR Infinite Biologics, Asurion, Atlantic Health, The Spar Family, South Jersey Industries, PennEast Pipeline, The Tischfield Family, JAG Physical Therapy, The Omaggio Family, The Sherbondy Family, Connor Strong, New Jersey Manufacturers Insurance, Somerset Development, Dr. Robert King, The Mueller Family, AMA Consulting, Fresh & Co., PixiCast, The Judy Taub Gold Foundation, Oxford Realty, Flemington Car & Truck Company