Can you help me with my research?

I am currently an undergraduate student studying Special Educational Needs and Inclusion at Bishop Grosseteste University. I am currently working on my undergraduate dissertation and it is at this point that I need your help!

I am looking for pupils to participate in a research study looking at the relationship between Tourette Syndrome and education, and I am looking for students personal experiences to inform my study. If you are willing to take part I will ask you to fill out a questionnaire which outlines your experiences with Tourette Syndrome and your experiences in school. No one other than me will have access to any of your personal information, and all names will be removed in the research in order to keep you anonymous.

If you have any further questions before completing the questionnaire please feel free to email me at b1202163@student.bishopg.ac.uk.

I would be truly greatful to hear your experiences, as I want to fully explore any relationship that can be found between TS and education, to see if there’s anything that we can do to to make education better for everyone!

Thank you to everyone who offered me encouragement on my page

Thank you so much to those of you who commented on my post from the other day by coming over to my Facebook page and offering encouragement! Everyone who commented brought light to my day and encouraged me so much. I am so glad to hear that I have helped so many people though my page.

One of my absolute favorite things to hear is that a parent is sharing my posts with their child who has TS. Some of you commented to say that your child looks forward to my posts and that my posts encourage them and make them feel less alone. I cannot express how good this makes me feel and how much I love making a difference in your children’s lives.

I also love hearing how your kids are doing and about how my site is helping them, so please comment on my posts to let me know how things are going or send me a message and it will probably make my day!

Also thank you to those of you who are adults with TS who commented letting me know my posts have helped you! I love to hear that my stories and posts about my “adventures” as a college student living with TS are helpful and inspiring to you.

Today is a much better day. Even though my ticcing is still pretty bad, my body seems to be less sore and seems to have gotten used to the increased ticcing. Also my OCD thoughts are better and I’m moving though my day with a better attitude. I know that all of your comments have contributed to the fact that today has been a lot better .

Anxiety over boys … need advice!

Good evening … and the anxiety kicks in. This isn’t 100 percent Tourette’s related, but is very much anxiety related. Soo there’s this one guy I like a lot. Today I invited him over. I’m going to have a few friends over, and him. They all know I like him. One or two of them know I really want to ask him out. And one wants to ask him out for me. SO I have a lot of stress on me.

I am not sure exactly how to tell him I wanna be his girlfriend. How to tell him I have feelings for him. I want to be the bigger person cause usually I’m down to the ground. I wanted to ask him out. Alone. But I’m worried “what if one of my friends walk in while I’m asking him out?” Or “what if I kiss him then they walk in and are all like OOOOOOHHHH?” And the most stressful question is: “What if he says no?”

So I’m not sure who will reply on time, but does anyone have a way I can ask him out with the least anxiety? I’m thinking a note, but I’m not sure.. ’cause that may make me look weak. Anyways, thoughts?

Also, this is starting to make me tic a little. I haven’t ticced that much in the past 3-6 months. But its starting to kick in again. It’s scarring me … does anyone else get more tics when their nervous/anxious?

Happy December! But the cold brings on serious tics…

Hello everyone! I haven’t posted in a long time, and I had forgotten to post yesterday so here it is … HAPPY DECEMBER!! My favorite month of the year. Christmas is my favorite holiday and it’s also my birth month.  I’m loving this cold weather. My tics are like a roller-coaster, but when they occur, they’re more severe than usual because of the season change.

How are your tics doing since the cold started coming in? Have an eptasticful day! 

Learn about my Ugandan adventure!

Ever since I can remember, I’ve wanted to go to Africa to work with children, to volunteer. When I started attending the Primary Teachers College in the Netherlands four years ago, that dream changed into teaching children in Africa. But there was always this little voice in my head that said, “with my Tourette’s, I will never be able to go to Africa for a long time.” A few weeks, maybe, but not for months.

I was always so envious of people who said they were going away for a few months, or even a year, to experience a new country, a new culture and to volunteer for a good cause. I never thought that could be me. It would be too exhausting, there were too many ‘new things’. I would be out of my comfort zone, without my house, parents, sister and friends. I wouldn’t have the basic things I thought I needed.

Last year I got the opportunity to go to Lira, Northern Uganda, for two weeks, with a Dutch organization called Edukans. It was a trip in which student teachers from the Netherlands and Uganda would work together. That I could do, I thought to myself, it was only two weeks. But being there, it hit me: there is no reason why I can’t do this for months! There is no reason why I couldn’t be happy volunteering and working with children, here, in Northern Uganda. I even realised that there was no reason why I couldn’t live here forever.

So I made a decision. I took a leap of faith and went back to Uganda. This time without a group. It was just me.

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