Would you like to share your TS story? If so, please send a private message to my Facebook page or send me an e-mail at email@example.com. Please answer these questions (by either typing them out or videotaping) and send a picture or two to go with it! Then I will post your story on this page!
Q: What is your name and how old are you?
A: My name is Jackie, I’m 20 years old, and I’m a Junior in college.
Q: How long have you had Tourette Syndrome?
A: I’ve had Tourette Syndrome since I was 3 years old. I was misdiagnosed for a long time though and for that reason I wasn’t officially diagnosed by a neurologist until I was 17.
Q: What kinds of tics do you have?
A: I’ve had to many types of tics over the years, but right now some of my tics are facial grimacing, blinking, rolling my eyes, head jerking, punching my arms outward, hitting objects around me with my hand, sniffing, coughing, and high pitched noises.
Q: Do you have any associated conditions?
A: I have OCD, anxiety, and sensory processing issues.
Q: What is life like for you living with Tourette Syndrome?
A: Living with Tourette’s has it’s challenges. I wake up every morning knowing that I will move through may day jerking my head, rolling my eyes, hitting , and making noises among many other things, but this is my normal. When it relly comes down to it , Tourette’s has given me so much more than it has taken from me. It has given me an amazing community of people who I will never take for granted. I would have never met my amazing camp twitch and shout family, the people who I do research with, or my Tourette’s Syndrome Association friends if I didn’t have TS. Tourette’s has also given me confidence. I don’t mind explaining or answering questions and I love educating people about TS. In fact i’m going to be educating 200-400 medical school students about Tourette’s in September! Having Tourette’s is a unique experience and the opportunities that have come from having TS have enriched my life more than I would have ever known. Like one of the nurses from camp twitch and shout said “people with Tourettes are not the ones that are disabled in our society, it is the “normal” people that are handicapped in the depth and beauty of life.”
Q: What advice can you give others who are newly diagnosed with Tourette Syndrome?