Would you like to share your TS story? If so, please send a private message to my Facebook page or send me an e-mail at firstname.lastname@example.org. Please answer these questions (by either typing them out or videotaping) and send a picture or two to go with it! Then I will post your story on this page!
Steff’s Tourette Syndrome Story
Q: How long have you had Tourettes?
A: I was diagnosed when I was 7.
Q: What kind of tics do you have?
A: Most facial, some arm spasm like twitches .. when I type, like now…my hands twitch alot. When there is something wrong(toothache, knee pain, headache) my tics localize to that area. I’ve had a wink that I have had since I was diagnosed. That gets interesting sometimes.
Q: Do you have any associated conditions?
A: I have OCD, am mildly BiPolar, & have anxiety.
Q:What’s life like living with TS?
A: It’s life. I take each day for what it is & hope tomorow will be good too. My tics are worse at night, or when I am stressing and my anxiety picks up, other than that, I usually get by okay.
Q: What advice can you give others that are newly diagnosed?
A: Live your life! I am a regular person, I just move around more than others. I hate people on any TS site that hate the world. Yes, its rough, but it’s amazing also.
Q: Whats the hardest thing about having TS?
A: Meeting new people or getting a new job. People are so quick to judge. Seeing other people get down on themselves because of the condition.
Q: What do you think others should know about TS?
A: I am just like you, I just move more. You cant catch it, I cant help it, get over it.
Q: What are your strengths and what do you like to do?
A: I clean, alot. I also like to exercise. Not just run, but actually exercise. I also do alot with my dogs.
Q: What are your dreams & goals in life?
A: To help others with TS. To have a lovely family, with kids. They may or may not be born with Tourettes. But we will take that journey in stride when it comes.