Tess and Paige are on a roll!

NJCTS Youth Advocates Tess and Paige Kowalski have been on a roll lately. In addition to their presentation at Hamilton Primary School they also presented to the 6th grade class at Temple Emanu-El in Westfield, NJ this week. They educated approximately 50 students and 2 instructors about Tourette Syndrome and the associated disorders and shared their TS stories. Brava, ladies!

Tess and Paige educate Temple Emanu-El about Tourette Syndrome

Tess and Paige educate Temple Emanu-El about Tourette Syndrome and the associated disorders

Some of the factors that cause tics to increase

Some of the factors that cause tics to increase

Tess and Paige show a clip of "I Have Tourette's but Tourette's Doesn't Have Me"

Tess and Paige show a clip of “I Have Tourette’s but Tourette’s Doesn’t Have Me”

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Tess and Paige lead the group in an exercise to help them understand what it can be like living with TS.

Tess and Paige lead the group in an exercise to help them understand what it can be like living with TS.

Tess and Paige take questions from the class.

Tess and Paige take questions from the class.

NJCTS Youth Advocates educate students at Hamilton Primary School about TS

Earlier this week, NJCTS Youth Advocates Tess and Paige Kowalski were joined by Youth Advocate-in-training Cami Jimenez to present to the third graders at Hamilton Primary School in Bridgewater, NJ. More than 115 students learned about Tourette Syndrome, acceptance, and treating others with respect. After school that same day, Education Outreach Coordinator Gina Maria Jones presented to 50 faculty and staff members. Now, the Hamilton School community has the tools to help kids with TS thrive. Way to go, ladies!

Paige and Tess discuss what causes tics to become worse.

Paige and Tess discuss what causes tics to become worse.

Paige and Tess share their TS stories.

Paige and Tess share their TS stories.

Cami, Paige, and Tess take questions from the third graders.

Cami, Paige, and Tess take questions from the third graders.

NJCTS Education Outreach Coordinator Gina Maria Jones looks on as the Youth Advocates answer questions.

NJCTS Education Outreach Coordinator Gina Maria Jones looks on as the Youth Advocates answer questions.

 

NJCTS Youth Advocates present to nearly 900 students and teachers about Tourette Syndrome

Eric Baldwin, Sarah Baldwin, Rachel Flynn, Principal Robin Bazzel, and Anna Baldwin after their presentation on Tourette Syndrome and the Associated Disorders at Clearview Middle School.

Eric Baldwin, Sarah Baldwin, Rachel Flynn, Principal Robin Bazzel, and Anna Baldwin after their presentation on Tourette Syndrome and the Associated Disorders at Clearview Middle School.

Today, NJCTS Youth Advocates Anna, Sarah, and Eric Baldwin presented to the 7th and 8th graders at Clearview Middle School in Mullica Hill, NJ. Nearly 900 students and teachers learned about Tourette Syndrome, tolerance, and acceptance. The Baldwins were joined by their cousin Rachel who spoke about her TS for the first time! Here they are with Clearview Middle School Principal Robin Bazzel. We are so proud of the great work this family is up to, spreading understanding and awareness of TS throughout South Jersey. Bravo!

Research project: Looking for participants to count their tics

My name is Rebecca and I am a 7th grade student at St. Gregory the Great Academy in Hamilton, New Jersey. Every year, I am required to submit a science experiment to the Mercer County Science and Engineering Fair. This year, I have decided to conduct my research on Tourette Syndrome. I have been diagnosed with Tourette Syndrome since I was nine years old and I have a high level of interest in understanding more about the disorder. Many organizations, including: NJCTS, Camp Twitch and Shout, the Rutgers University Tourette Syndrome Clinic and my private doctors and psychologists, have been a tremendous help to me and my family in coping with my Tourette Syndrome. I have learned to accept my tics and to be proud of myself and my accomplishments. I am so much more than a kid with Tourette Syndrome. I am also a great student, a competitive swimmer, an avid reader and a lot of fun to be around!

Right now, I am asking for help with my research on Tourette Syndrome. I am looking for participants with Tourette Syndrome to count their tics for me. My hypothesis is that students with Tourette Syndrome will have an increase in tics after school. I need volunteers who are willing to count their tics for 30 minutes on 3 school days and 3 non-school days. My experiment is due on January 11, 2016, so I am hoping to collect all of my data by the end of December.  

Here’s what you need to participate: A permission form and an explanation of the procedure and a data collection table. Please contact me at 609-647-6051 or dheimowitz@gmail.com if you have any questions.

The Application for the 2016 NJCTS Tim Howard Leadership Academy is now Available!

Leadership Academy logoThe NJCTS Tim Howard Leadership Academy is a unique and invaluable learning experience for teens with Tourette Syndrome. Over the course of these rigorous four days, participants will stay overnight at Rutgers University, attend engaging workshops that provide a deeper understanding of their diagnoses, participate in small group discussions and be encouraged to share personal triumphs and challenges, and will be challenged through numerous educational activities to develop their sense of self-leadership, self-empowerment, and resilience. Eligible applicants:

  • Have a diagnosis of Tourette Syndrome from a qualified medical practitioner
  • Are entering their Sophomore year of high school through having just completed their Senior year of high school by the summer of 2016
  • Have an active interest in, and commitment to, their vision of themselves as leaders
  • Are comfortable being away from home for four consecutive days and nights
  • Can comfortably and meaningfully participate in an intensive, demanding learning experience with others who share their diagnoses, which includes comfort interacting with others and sharing information about themselves, comfort discussing their diagnosis, and comfort being around others who tic and have anxiety disorders.
  • Ability to sit in a workshop setting for up to an hour at a time

Top THLA 2015Please note that the application has changed significantly for 2016:

  • Requires feedback and a questionnaire from a medical practitioner who has seen the applicant within the past 12 months.
  • Requires feedback from an educator who has worked with the applicant in a classroom setting in the past 12 months.

Because consideration for admittance is dependent on all aspects of the application being completed, you are advised to begin the application process as soon as possible to ensure a completed application is submitted by the deadline. 

APPLICATIONS ARE DUE BY MARCH 1, 2016.   

Participants form lasting connections, gain a better understanding of themselves, and walk away with a toolkit that prepares them for a successful future! Interested applicants should request an application by contacting Academy Director, Melissa Fowler, via email at mfowler@njcts.org. Applicants who are being considered for admittance will be contacted for an interview by March 20th, 2016.

Thank you for your interest, and best of luck!