TS Success Stories: Steff, 23

Would you like to share your TS story? If so, please send a private message to my Facebook page or send me an e-mail at jspershing93@gmail.com. Please answer these questions (by either typing them out or videotaping) and send a picture or two to go with it! Then I will post your story on this page!

Steff’s Tourette Syndrome Story

Q: What is your name & how old are you?
A: Steff & 23.

Q: How long have you had Tourettes?
A: I was diagnosed when I was 7.

Q: What kind of tics do you have?
A: Most facial, some arm spasm like twitches .. when I type, like now…my hands twitch alot. When there is something wrong(toothache, knee pain, headache) my tics localize to that area. I’ve had a wink that I have had since I was diagnosed. That gets interesting sometimes.

Q: Do you have any associated conditions?
A: I have OCD, am mildly BiPolar, & have anxiety.

Q:What’s life like living with TS?
A: It’s life. I take each day for what it is & hope tomorow will be good too. My tics are worse at night, or when I am stressing and my anxiety picks up, other than that, I usually get by okay.

Q: What advice can you give others that are newly diagnosed?
A: Live your life! I am a regular person, I just move around more than others. I hate people on any TS site that hate the world. Yes, its rough, but it’s amazing also.

Q: Whats the hardest thing about having TS?
A: Meeting new people or getting a new job. People are so quick to judge. Seeing other people get down on themselves because of the condition.

Q: What do you think others should know about TS?
A: I am just like you, I just move more. You cant catch it, I cant help it, get over it.

Q: What are your strengths and what do you like to do?
A: I clean, alot. I also like to exercise. Not just run, but actually exercise. I also do alot with my dogs.

Q: What are your dreams & goals in life?
A: To help others with TS. To have a lovely family, with kids. They may or may not be born with Tourettes. But we will take that journey in stride when it comes.

Vlogs: Everything related to Tourette Syndrome but the kitchen sink

  • One of the lesser known learning disabilities that can be associated with Tourette Syndrome is dysgraphia.
  • IEPs and 504s are powerful learning tools that people with TS and associated disorders can use to help make the education process easier.
  • Ignorant, truly uneducated “bad” teachers can make life very rough on a student who has TS.
  • But there are also some “good” teachers who truly get what it’s like to have TS and are all about helping students through that process.
  • Anxiety is a terrible thing to have, but it’s even worse when you have TS or OCD.
  • Panic attacks are an extension of anxiety. Learn how they can develop and the effect they can have on you.
  • Many, many people with Tourette Syndrome also suffer from OCD. See how it has affected me in this video.
  • Being bi-polar isn’t fun. In fact, it can turn into a manic condition.
  • Another aspect of being bi-polar is that it can turn into depression.

There are Definite Possibilities for people with Tourette Syndrome

My name is Logan Kurtz, and I am 17 years old. I am the CEO and founder of Definite Possibilities, a website that gives people with any disability or disorder a place where they can feel comfortable and express themselves. I am also the creator of the Facebook page called Help Spread the Word about Tourette’s Syndrome.

Throughout my life with Tourettes Syndrome, challenges were always present in anything I did. Problems always occurred, whether I was ready for them or not.

“My son had a dormant Tourette’s gene. It became active when a psychiatrist went the easy route and decided to put him on a stimulant drug, Ritalin, when there was Bi-polar on the father’s genetic side. A stimulant drug should NEVER be prescribed when there is Bi-polar in the history. Within 36 hours my son’s Tourette’s gene was activated. That was 11 years ago.”

My mom said about me on Nov. 3, 2010. I have many stories to tell about my life with TS. Continue reading