Tourette Syndrome is a highly misunderstood disorder. There are so many misconceptions out there that make the lives of those with Tourette more difficult. It hurts us when we hear things like “Can’t you just stop?” and “You don’t have Tourette’s! You don’t swear!”
Every child, teen, and adult with Tourette only wishes to be understood. So with the help of others living with the condition, here are the things we wish you knew about Tourette’s Syndrome.
From Jennifer, a mother of a child living with Tourette’s:
My 9-year-old daughter with TS wishes kids would not think she is making it up, especially after them talking about a particular tic makes her do it. It is very understandable to me why a kid would think “Hey, you haven’t been doing that at all and now that I talked about it you have done it 20 times – your faking.” But the power of suggestion is very real with TS and that is why education is so very important. I usually try to point a family towards the TSA website or tell them to Google it. Often if a child can read it they then really believe it. Most adults also don’t understand “the power of suggestion” either. Good luck and great job!
From Brandy, a mother of a child living with Tourette’s:
I wish others realized that tics wax and wane and severity is different from person to person. My daughter’s are mild but they exist. Also, just because you do not see them or do not recognize that constant throat clearing as a tic – it is one. Also, she is amazing and her tics just make her that much more special! *Ansley is 9 years old, her tics are mild. She also has OCD, anxiety, SPD, ADD, dyslexia and dyscalculia. She has the biggest heart, loves people and loves to draw pictures for people she cares about. She wants everyone to be happy and enjoys making presents for people in the form of her art work which is mainly about dogs. When she grows up she wants to be a veterinarian or train dogs to help people. I remind her that she can do anything she wants to do and encourage her. Continue reading