Applications now available for 2015 Tim Howard NJCTS Leadership Academy!

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The Tim Howard NJCTS Leadership Academy is a four-day program that takes place in state-of-the-art dormitories on Busch Campus at Rutgers, the State University of New Jersey in Piscataway. The 2nd annual Leadership Academy will take place August 6-9, 2015, and applications are available now for this incredible opportunity!

Participants will work, play, eat and sleep at Rutgers and enjoy a wide range of activities, such as:

  • Interacting with doctors, psychologists, and other experts in the field to learn more about Tourette Syndrome!
  • Being a part of large group discussions and small group discussions with other teens and young adults with TS. You’ll hear their stories and have opportunities to share your own!
  • Participating in a variety of recreational activities, ranging from swimming, sports, yoga, games, team-building activities, movies, singing, and more!
  • Forming friendships and connections with other participants, and meeting successful young adults who will serve as Coaches, guiding participants through the weekend’s events!

Guest speakers include leading experts in their field, all of whom have extensive knowledge of TS, and you’ll learn more about TS from a variety of different perspectives, including the biology of TS, the psychology of TS, and how TS affects people socially.

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Programming

Programming is broken into three tiers that explain Tourette Syndrome and associated disorders from these perspectives:

  • a biological perspective;
  • a psychological perspective; and
  • the social implications of these disorders.

Topics include

  • brain activity with TS
  • Executive Functioning Disorder
  • psychological ramifications of, and treatments for, TS
  • self-advocacy, transition, and negotiating sociological systems
  • forming healthy social relationships.

Presenters include neurologists, psychologists, psychiatrists, social workers, and other relevant medical and education professionals with extensive knowledge about TS.

All activities and sessions will be related to the treatment and management of TS and associated disorders, including yoga, meditation, and movement therapies. Social activity and recreation are included.

Can you help me with my research?

I am currently an undergraduate student studying Special Educational Needs and Inclusion at Bishop Grosseteste University. I am currently working on my undergraduate dissertation and it is at this point that I need your help!

I am looking for pupils to participate in a research study looking at the relationship between Tourette Syndrome and education, and I am looking for students personal experiences to inform my study. If you are willing to take part I will ask you to fill out a questionnaire which outlines your experiences with Tourette Syndrome and your experiences in school. No one other than me will have access to any of your personal information, and all names will be removed in the research in order to keep you anonymous.

If you have any further questions before completing the questionnaire please feel free to email me at b1202163@student.bishopg.ac.uk.

I would be truly greatful to hear your experiences, as I want to fully explore any relationship that can be found between TS and education, to see if there’s anything that we can do to to make education better for everyone!

Tim Howard’s book “The Keeper” is now available!

Here’s are two excerpts from Tim Howard’s new book, “The Keeper,” which came out yesterday, December 9. The first is from the chapter called “Like Coming Home” and talks about arriving at Everton Football Club:

“At the start of the ’06-’07 season, I step out onto the field at Goodison Park, where Everton plays. It’s the derby with Liverpool, the hometown rivals. I love the feel of the place — the rickety old stadium, as historic and un-corporate as they come. I love the fans, their pure, passionate, and deafeningly loud dedication to the team. I love the fact that the team has taken a chance on me, that they’ve pulled me out of a dark place. Standing there on the field, about to play Liverpool, all I want to do is play my heart out. I’ve come home.”

This one is from an early chapter called “Goals That Matter”, when Howard first learned that he had Tourette Syndrome & OCD:

“I struggle in school — I’m hyperactive, and I have trouble sitting in my seat. My mother, aware of my desperate need to move, to run, signs me up for soccer by age 6. I fall in love with the game. I love the fluid back-and-forth, the challenge of playing a game using only one’s feet. By age 11, I begin to show strange behaviors; I touch things compulsively. I become obsessed with picking up random items for no logical reason. Then I develop tics — twitches and jerks that I can’t control no matter how hard I try. Mom and I learn that I have Tourette Syndrome (TS) and Obsessive Compulsive Disorder (OCD). The doctor tells my mom that often, these conditions have a “flip side,” and he’s seen cases where kids have special gifts. It is only on the sports fields that I feel relief, so I focus on my athletic skills exclusively….obsessively.”

You can read much more about Tim Howard, who is a Board Member of the New Jersey Center for Tourette Syndrome & Associated Disorders (NJCTS) here:

Thank you to everyone who offered me encouragement on my page

Thank you so much to those of you who commented on my post from the other day by coming over to my Facebook page and offering encouragement! Everyone who commented brought light to my day and encouraged me so much. I am so glad to hear that I have helped so many people though my page.

One of my absolute favorite things to hear is that a parent is sharing my posts with their child who has TS. Some of you commented to say that your child looks forward to my posts and that my posts encourage them and make them feel less alone. I cannot express how good this makes me feel and how much I love making a difference in your children’s lives.

I also love hearing how your kids are doing and about how my site is helping them, so please comment on my posts to let me know how things are going or send me a message and it will probably make my day!

Also thank you to those of you who are adults with TS who commented letting me know my posts have helped you! I love to hear that my stories and posts about my “adventures” as a college student living with TS are helpful and inspiring to you.

Today is a much better day. Even though my ticcing is still pretty bad, my body seems to be less sore and seems to have gotten used to the increased ticcing. Also my OCD thoughts are better and I’m moving though my day with a better attitude. I know that all of your comments have contributed to the fact that today has been a lot better .

Anxiety over boys … need advice!

Good evening … and the anxiety kicks in. This isn’t 100 percent Tourette’s related, but is very much anxiety related. Soo there’s this one guy I like a lot. Today I invited him over. I’m going to have a few friends over, and him. They all know I like him. One or two of them know I really want to ask him out. And one wants to ask him out for me. SO I have a lot of stress on me.

I am not sure exactly how to tell him I wanna be his girlfriend. How to tell him I have feelings for him. I want to be the bigger person cause usually I’m down to the ground. I wanted to ask him out. Alone. But I’m worried “what if one of my friends walk in while I’m asking him out?” Or “what if I kiss him then they walk in and are all like OOOOOOHHHH?” And the most stressful question is: “What if he says no?”

So I’m not sure who will reply on time, but does anyone have a way I can ask him out with the least anxiety? I’m thinking a note, but I’m not sure.. ’cause that may make me look weak. Anyways, thoughts?

Also, this is starting to make me tic a little. I haven’t ticced that much in the past 3-6 months. But its starting to kick in again. It’s scarring me … does anyone else get more tics when their nervous/anxious?