“Erasing Limits” debuts today!

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Hey everyone! As the new Erasing Limits website and Facebook page Logan and I have been working on debuts today, I have a question for all of you. What other disorders/conditions/disabilities/challenges do you want to see videos about on our new website?

This website is going to be a fantastic new resource, and I encourage you to all check it out and take advantage of it.

The website is basically going to be a video database where you can find high-quality, informative and inspirational videos about various disabilities, disorders and challenges. All videos on the site will be videos that Logan and I have reviewed and think are worth watching for anyone wanting more information, support or encouragement in its respective area.

So far the disorders/conditions that the website includes are Tourette Syndrome, ADHD, OCD, Sensory Processing Disorder, Autism and Stuttering.

We of course are going to expand this database. So my question for you all is, like I said above, what disorders/conditions/disabilities/challenges do you want to see videos about on our new website that we have not already included? These can be TS related conditions or non TS related. What do you guys think? I would love any and all input. :)

Don’t forget the distance you have come!

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So, the other day I was on a train and a song came on called “The Distance You Have Come,” written by the wonderful Scott Alan and sang by the magnificent Natalie Weiss. Just as the train pulled in to my station, the lyrics were “and when you reach that place, when you’re miles from where you started, don’t forget the distance you have come.”

Immediately, I thought this was quite comical — as I’d just reached my destination — but then I really thought about it, and the lyrics in the song just describe the fight that people take to get to wherever they want to be in life, whether that’s a tiny step or a huge mountain.

The lyrics are so inspirational and I think so poignant, specifically for people like us, whose small achievements each day may go unnoticed by so many people. Please take a listen, I cannot describe the uplifting feeling I get from it!

So never forget the distance that you have come!

Please help out my Tourette Syndrome awareness efforts

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Hi! For the Tourette Syndrome Awareness Month and European TS Awareness Day (June 7), I’m collecting as many “versions” of Tourette’s as I can, using the logo of the Dutch TSA. Can you help me with this?

What you need to do is take the circles below and fill them the way TS is for you — the big stuff in the big circles, and the small stuff in the small circles.
For everyone, Tourette is different, so for everyone the circles are different! As you can see in the example below, you can add circles if you want to, or leave them the way it is.

You can send your version of TS to me via e-mail (kids@tourette.nl) or on Twitter (@iLaura_B, @Touretteprobs or @StichtingGTS). I want to make a video and/or collage of it, so it would mean a lot to me if I had a lot more of them!

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Support is one of the best things in the world

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All I can say is WOW. I just got back from a dinner with my parents and grandparents to see all of your love and support. I was shocked when I saw that so many people had commented on this post to let me know how much you guys support me.

I read every single comment, and each and every one made me feel like I am important, I am someone, I am making a difference, and I am a part of this amazing TS community. You are all amazing, and you all made me feel so much better!

I know my mom truly loves me, cares about me, and wants the best for me in life, but I believe I also now need to accept that she just can’t understand what Tourette Syndrome truly is and what I go though with it every day.

For me, you guys and my amazing friends from high school and college are my rock. You make me feel loved, understood and accepted. Sometimes after I have a conversation like this with my mom, I feel hopeless, but coming back to this brightened my spirits.

This time, I know there is no reason to feel what I have felt in the past. This time, I know that although some people just don’t understand differences, the overwhelming majority of people I have encountered in my life and will encounter in the future will understand and accept me if I just explain and am open about what I have and how it effects me. You guys are the best.

Even though she cannot accept my TS, I just have to accept her for who she is and for her inability to come to terms with this. One of the hardest things is that because of her inability to accept my TS, I suppress my tics around her.

That is one of the hardest things for me, not only because suppressing them is of course physically painful and distressing, but because I feel like she doesn’t know the real me. The real me lets my tics out around my friends and in class because I am not ashamed that I have TS and I accept myself, tics and all.

The real me advocates for acceptance and understanding of TS and all differences. The real me is not afraid to let others know that I have TS because Tourette is something I was born with, something that is a part of me and something that has made me the person who has a passion for making a difference in the world and for making everyone who has differences feel loved, accepted and not alone.