How NJCTS is Organized

The New Jersey Center for Tourette Syndrome is a collaboration among TSANJ, Rutgers University, The Rutgers University Cell and DNA Repository and hospitals throughout the state of New Jersey.

NJCTS provides an innovative multi-disciplinary, multi-institutional approach to treatment for the thousands of New Jersey families with TS.

It is the first and only program of its kind in the nation and will serve as a model for others to follow.

Comprehensive activities fall to independent, yet affiliated colloabrators, under the oversight of a Board of Directors and professional advisory council, as follows:

• NJCTS HOTLINE - Intake and information
• HOSPITAL AFFILIATES - Treatment, research and student practicum to train
  a new generation of TS professionals
• TS CLINIC AT RUTGERS - The only university-based TS Clinic in the nation, offering counseling for TS and Associated Disorders to individuals and families. The Center also participates in research studies and offers hands-on experience to doctoral students in Psychology and Social Work to train a new generation of TS professionals
• RESEARCH - Through the Rutgers Clinic, NJCTS is engaged in research into alternative treatments such as Biofeedback and a therapy called Habit Reversal. We're active in studying the effects and finding helpful strategies for dealing with stigma. Planned in 2008 will be the undertaking of a census study to ascertain the real TS population, and with collaboration with the Rutgers University Department of Genetics we have established the NJCTS Cell Sharing Repository
• NJCTS CELL SHARING REPOSITORY - The first such program in the world, the cell sharing repository makes clinical and genetic data and DNA cell line samples available -- at no cost -- to qualified scientists from around the world who are working on research into the causes and treatments for TS and associated disorders.
• COMMUNICATIONS AND AWARENESS - NJCTS organized marketing communications efforts are used to educate the public and professional communities about TS and the services available for those who have it and their families.
• SPEAKERS BUREAU - Makes available professionals for professional trainings and webinars to the public and professional communities
• PROFESSIONAL EDUCATION - School In-service program, Hospital Grand Rounds, Conferences, School Nurse Programs and literature provide information and trainings on an ongoing basis to those who work with our kids -- To date, over 35,000 educators have participated in our in-service trainings
• TSANJ - Hospital-based support groups, a 24-hour helpline, lending library of informative literature, member coordination and direct communication to families are provided through the Tourette Syndrome Association of New Jersey, Inc. www.tsanj.org.

Click the organizational chart below to view a larger version.